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Please
include these points when talking to the media:
1. Approximately 100 young people die each month in the U.S. from
hereditary cardiac arrhythmias.
2. Children and young adults
who die from these conditions usually appear healthy, vital and
normal.
3. A child should be seen by a doctor if she/he has:
- Family history of young, unexpected, unexplained sudden death,
drowning, or one-car accidents
- Fainting or seizure during exercise, excitement or when
startled
- Consistent or unusual chest pain and/or shortness of breath
during exercise
4. LQTS and other SADS conditions are
absolutely treatable and treatment saves lives!
5. For more
information:
SADS
Foundation mission: To save the lives and
support the families of children and young adults who are
genetically predisposed to sudden death due to heart rhythm
abnormalities.
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Dear
Jenny,
This Thursday evening, ABC News Primetime will air a television piece
on SADS conditions at 10:00 pm, EST or 9:00 pm central time. The segment
will feature Dr. Michael Ackerman and one or more family stories.
While this coverage will definitely help to educate the public about
Long QT Syndrome, a little work on your part will make it even more
effective! We know it's short notice (we got short notice), but we need
volunteer help to:
#1
Please contact your local ABC Affiliate!
Ask them to do a "tie-in" story for broadcast on the local news.
Ask your local newspaper to run a follow- up piece. This is a great
chance to get SADS stories and awareness information out into your
community. When national media have stories about a subject, local
media like to follow up with local stories.
Find
your local ABC Affiliate here.
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#2 Send
us an email!
Let us know who you spoke
with and how it went. Please also let us know if there's anything we
can do to follow up.
If you would like information about how to work with local media
please contact Jenny. (jenny@sads.org)
When we all work together, we will save
lives!
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