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Please
include these points when talking to the media:
1. Children and young people who die from these conditions usually
appear healthy, vital and normal.
2. Your child should be
seen by a doctor if she/he has:
- Family history of unexpected, unexplained sudden death in a
young person
- Fainting (syncope) or seizure during exercise, excitement or
startle
- Consistent or unusual chest pain and/or shortness of breath
during exercise
3. LQTS and other conditions are
absolutely treatable and treatment saves lives!
4. For more
information:
SADS' Mission:
To save the lives and
support the families of children and young adults who are
genetically predisposed to sudden death due to heart rhythm
abnormalities.
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Dear
Sarah,
We want to thank you for your support of the SADS Foundation. As you
know, conditions like Long QT Syndrome are treatable and children can live
happy, productive lives if they are diagnosed and treated.
Public awareness is the number one priority for the SADS Foundation
this year. When you tell your story to the media (radio, magazine, TV,
newspaper, community newsletter, etc.), you are not only letting parents
know the warning signs that may protect their children, but also
physicians, nurses, teachers, etc. who see and treat children every day.
Media has a very broad reach and can affect change in many groups.
Newsweek
Article
One of SADS' Advisors, Dr. Victoria Vetter, Philadelphia, PA will
be quoted in the February 14th Issue of Newsweek Magazine. The
article is about sudden cardiac death.
We are asking you to contact the media in your community and tell
your story. This is a great chance to get your story told in your
community. When national media have stories about a subject, local
media like to follow up with local stories.
If you would like information about how to work with local media
please contact Carl. (carl@sads.org)
When we all work together, we will save
lives!
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