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Our Mission is to save the lives of children and young adults who
are genetically predisposed or otherwise susceptible to sudden death
due to cardiac arrhythmias and to provide education and support
to families and the medical community who are dealing with these
disorders.
The SADS Foundation is dedicated to providing
information, assistance & hope.
[MORE
INFO]
site
updated January 10, 2008 |
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Timothy
Syndrome--Timothy Syndrome (TS) is a rare and serious
genetic disorder characterized by a spectrum of complicated
health concerns which include Long QT Syndrome & a type
of autism. It is named after one of our original founders
and SADS Board members, Katherine Timothy.
Louis J. Acompora Foundation--Commotio Cordis is a syndrome that results from a blunt impact to the chest which leads to cardiac arrest.
International
Partners
The
Canadian SADS Foundation
We have a great counterpart in Canada, the Canadian SADS
Foundation, with whom we work closely to accomplish our
mutual goals of education, research and the many other
programs of SADS. The Canadian SADS Foundation is under
the very capable leadership of Pam Husband and Nancy Busse.
SADS Australia Foundation
We have a another great counterpart in Australia, the SADS
Australia Foundation, located in Melbourne. We work closely
with SADS Australia to accomplish our mutual goals of education,
research and the many other programs of SADS. The SADS Australia
Foundation is under the very capable leadership of Julie
Foley.
SADS UK LQTS Site
Anne
Jolly, the Chairperson for the Ashley Jolly SAD Trust (SADS
UK) set the Trust up after her fit and healthy 16-year-old
son Ashley died unexpectedly in his sleep. This affiliate
is hosting the first annual SADS Conference in London October
12-13, 2002.
Dutch
Hereditive Site Now
in English, too!!
Er is een Nederlandse site http://www.cardiogenetica.nl
waarop in gemakkelijk toegankelijk Nederlands informatie
te vinden is over erfelijke hartaandoeningen. Tevens biedt
het u de mogelijkheid met anderen in contact te komen en
uw vragen voor te leggen aan een arts.
HeartCenterOnline
Implantable.com:
A website for people with ICDs
Kara
Mia--Kara Mia is a moving story about Kara Anglim,
who had a cardiac arrest at age 14 while running track,
with neurologic complications. She was subsequently
diagnosed with Long QT Syndrome. This book is a beautiful
story of courage, strength and faith, and the ability
of the human spirit to rise above and grow from the
challenges and hurdles which are placed into the lives
of many of us. It was written by Kara's mother, Maryann
Anglim, R.N., B.S.N., and Walter Allan, M.D., a child
neurologist.
The
National Registry of Sudden Death in Young Athletes
Parent Heart Watch partners with SADS to promote awareness of SCD.
Pediatric
Cardiomyopathy Registry
The Partnership for Prescription Assistance brings partners together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free.
https://www.pparx.org/Intro.php
Sudden Cardiac Arrest Association a group of Sudden Cardiac Arrest survivors working to increase awareness and education about SCA.
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