A Sudden Arrhythmia Death Syndromes (SADS) Foundation.
 
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Our Mission is to save the lives of children and young adults who are genetically predisposed or otherwise susceptible to sudden death due to cardiac arrhythmias and to provide education and support to families and the medical community who are dealing with these disorders.

The SADS Foundation is dedicated to providing information, assistance & hope.

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site updated September 27, 2007

 
Sample Materials, SADS Volunteer Information, An Overview of the
Long QT Syndrome, and Scientific Articles


Risk Assessment Form: should be used by physicians, coaches, parents for all kids.

Sample Materials Available for your information and to distribute to the public
(pdf format. To obtain Acrobat Reader, click here):

Facts About SCD in the Young
LQTS Fact Sheet

LQTS Stories
LQTS Brochure
SADS Foundation Brochure
Awareness Poster
History of SADS

Teacher Materials
     Flyer to Teachers
     Awareness Poster
     Exercise
     Risk Assessment Form

Coach Materials

     Flyer to Coaches
    Awareness Poster
    Exercise
Risk Assessment Form

School Nurse Materials
    Letter to Nurses
    Screening for Long QT
    Syncope
    Awareness Poster
    Facts About SCD in the Young
    LQTS Fact Sheet
    Exercise
    Risk Assessment Form

School Nurses also receive a teacher & a coach flyer.

Please send me a packet for my family's information:
Family Registration Form

Please send me packets to distribute in my community:
LQTS MATERIALS REQUEST FORM

Information and ideas for SADS volunteers: (MS Word format)

Raising Public Awareness Packet
—gives ideas about conducting a local awareness campaign and also tips for working with the media
Support Group Activities—ideas for conducting a local support group
Fund Raising Ideas

About Long QT Syndrome

Other Articles about Sudden Death in the Young and Long QT Syndrome :

Long QT Syndrome & Pregnancy

Exercise and LQTS--Bethesda Conference

When a Child Dies Suddenly

Implantable cardioverter-defibrillators ( ICDs) in the Young

AHA/ACCF Scientific Statement on the Evaluation of Syncope (download this PDF document) From the American Heart Association Councils on Clinical Cardiology, Cardiovascular Nursing, Cardiovascular Disease in the Young, and Stroke, and the Quality of Care and Outcomes Research Interdisciplinary Working Group; and the American College of Cardiology Foundation In Collaboration With the Heart Rhythm Society

Task Force on Sudden Cardiac Death, European Society of Cardiology-Summary of Recommendations
(http://www.escardio.org/NR/rdonlyres/1277BB0B-956A-4DB9-B447-C4243ACD4E26/0/SCD_Ex_Sum.pdf)