Find
a Physician for Suspected SADS Conditions
(LQTS, ARVD, Brugada, CPVT, etc.)
The
SADS Foundation receives many telephone calls and e-mails
requesting information on how to find a qualified and knowledgeable
doctor. We understand that it is still difficult in many locales
and circumstances to find physicians who are familiar with
the emerging and rapidly growing body of knowledge regarding
the genetic causes of arrhythmias, inlcuding LQTS. Here are
two suggestions:
Our
Physician Referral service: We maintain a list of physicians
in the USA, and some other countries, who currently treat
LQTS patients or are experts in the electrical system of the
heart. We have both adult and pediatric cardiologists on our
list. The list does not encompass all cities, but the list
is growing rapidly and we can often recommend a physician
in your geographic area who is prepared to evaluate patients
with symptoms suggesting LQTS or other genetic arrhythmia.
Please call 1-800-stop sad (786-7723) and tell us your situation
and concerns, and we will see if we can recommend someone
in your area.
Alternatively,
consult an adult or pediatric cardiac electrophysiologist
(an expert in the electricity and rhythm of the heart) in
your area. Most major medical centers and many cardiology
groups have cardiac electrophysiologists. Don't hesitate to
ask them how much experience they have had with LQTS. If you need help finding a qualified physician in your area:
Pediatric Electorphysiology Society (for children) http://www.pediatricepsociety.org/find_ep.shtml
Heart Rhythm Society (for adults) http://hrsonline.org/find_heart_rhythm_specialist/default.asp
Finally,
if you still have any questions or doubts, get a second opinion.
Contact the Foundation for more information and support with
your diagnosis.
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